Rett Syndrome and School

Rett Syndrome affects girls of all ages across the world. Those who live in the UK have the potential to lead productive and fulfilling lives, but only if they are provided with a quality support network. This support network must come together at a young age. During the school age years, girls who are diagnosed with Rett Syndrome must be surrounded by a great team of individuals who understands what the child needs to succeed. In school, kids learn both social and academic skills that they will use throughout their lives. The key is to make sure that all team members are on the same page.

Guidance counsellors are on the front lines when it comes to helping students who have Rett Syndrome. They offer a variety of services. One of those very important roles involves helping students to thrive within a social setting. Often, Rett Syndrome inhibits children from being able to participate in social activities like sports. As a result, they are often left out, and they might not develop close friendships. Guidance Counsellors offer alternatives for these students so that they can get to know their peer groups better. They also serve to ensure that the student is able to overcome feelings of depression brought on from being teased in school.

Parents are of course a critical part of the equation. It all starts at home, and positivity is the key. Preparedness allows the student to go to school with less worry. Parents need to make sure that all home study requirements are complete. Procedures for contacting the mom or dad must be in place in case of an emergency. If the child knows this is in place, then she will be able to thrive on a much higher scale. Encouragement during times of struggle is critical. Kids with Rett Syndrome might get down on themselves if they are not able to verbalise key ideas. Parents can offer ways for them to express themselves.

Teachers can help those who suffer from the disorder in a variety of ways. They can allow the student to leave the classroom early so that she can get to her next class on time. This also limits the amount of time that she spends in the school hallways during class changes. This is important because kids who have the disorder often lack the motor coordination of normal children. As a result, they experience a stuff-legged walk that makes it harder to get from one place to another. Friendships within school play an important role for higher self-esteem. Peer roles vary depending on the child, but good friends will be understanding of the limitations provided by the disorder.