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RETT SYNDROME ASSOCIATION UK

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World Congress Paris 10 - 13 October 2008
 

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Telephone support

Office hours  Monday - Friday 9am - 5pm, please ring the office for advice, information and support on a wide variety of topics.  Our Family Support Workers and staff are there to help you.

Out of office hours  If help is required out of office hours or in an emergency, contact Clare Morrow: phone 01943 884082.

Contact Network   We have 18 contact network supporters who are available for help by phone.  They are trained parents or grandparents of a person with Rett syndrome.  All supporters have direct experience and specialised knowledge which they would be delighted to use to help others.  Members can get a full list of names from the office.

Also, CarersLine is available whatever your caring responsibility. If you have a query you can call the CarersLine on 0808 808 777 Wednesday and Thursday 10am - noon and 2 - 4pm. Their web address is www.carersonline.org.uk. When you call CarersLine you will go straight through to an expert adviser, who can:

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explain how you can get services to help you – for example, respite care and home helps

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tell you if you are entitled to benefits

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put you in touch with local support

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send you information booklets on topics such as how to get a break from caring, how to get Council Tax reduced or how to arrange residential care.

© Rett Syndrome Association UK 2004