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RETT SYNDROME ASSOCIATION UK

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Frequently Asked Questions (FAQs)

Over the years we have received questions covering a wide range of concerns regarding development and management of children and adults with Rett syndrome.  Our team of medical advisors at Great Ormond Street Hospital have come up with some responses which can be accessed by clicking the buttons on the left.

Although the suggestions and recommendations made in answer to the frequently asked questions arise from real queries, they are general and not necessarily appropriate for any one individual.  It is always essential to discuss the management of an individual with Rett syndrome with relevant professionals who know the person and their needs.