Contact
Network
The contact network is a group of
parents (and grandparents) willing to listen and share their experiences.
They are also there for anyone who has had a recent diagnosis for their
daughter or son, to talk through the different thoughts and feelings around
at that time.
As you will have found, there is
much to think about when caring for someone with Rett syndrome – all the
medical, emotional, social and educational aspects. The Contact Network
Supporters have, over time, built up experience on these different aspects
of caring for someone with Rett syndrome. Their specific areas of interest
and experience are listed in the magazine on the back page, along with their
contact details.
All members of the Contact
Network have received basic training in listening skills and will have
regular refresher training. The Contact Network make a brief (anonymous)
record of the calls they receive and the subject they are being contacted
about; this is purely for our statistical purposes. In this way, we can
become aware of any issues repeatedly raised, so that we can think about how
to put in place more support systems.
