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World Congress Paris 10 - 13 October 2008
 

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Bereavement

We want to reassure you from the outset that many people with Rett syndrome remain in good health into adulthood and we know women of over more than 60 years who are still clearly enjoying life.

Losing someone you love is one of the most difficult times in anyone’s life. It is something you can never really be prepared for, whatever the circumstances. It brings with it so many different emotions and can take a long time for the pain to heal. Grief and loss are emotions that all humans experience in differing degrees.

There are many things to deal with around the time of a bereavement that make it all the more difficult. For example, the practicalities of arranging the funeral and the thought of facing life ahead without that person. It can also be hard to understand the different ways that people are affected and react, and this can cause rifts between family members if not openly talked about.

We wanted to support those going through the grieving process and also to write something that people could look through when things are relatively ok. We have written a booklet called “When someone close to us dies – Coping with bereavement”. We have outlined some of the practical issues involved, but have used the booklet mainly to look at the feelings and experiences that people have at such times. It is known and accepted that there are what is called 'cycles of grief' we go through when a loss or bereavement occurs, not always in the same way. It can help to understand these processes – both for yourself and other family and friends affected.

If you would like to talk to us about any of the issues covered here or in the booklet, please do call Melanie at the office.

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