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  Rett
syndrome is a complex neurological disorder. It affects mainly
girls. Although present at
birth, it becomes more evident during the second year. It could occur
in any family at any time. Something goes wrong with the genetic
makeup of the cells which become the baby. One in 10,000 girls is
affected.
Whilst there is variability in the severity of
the disorder, most people with Rett syndrome are profoundly and multiply
disabled and highly dependent on others for all their needs throughout life.
Increasingly, people with Rett syndrome live well into their 50s and
beyond.
We are a national charity.
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We offer information, advice, practical
help, friendship and support to people with Rett syndrome, their
families and carers.
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We work to
increase clinical and public awareness of the condition.
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We fund and
prompt research towards an eventual cure.
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We rely almost entirely on
donations and grants for our income. We
are grateful for every penny we receive.
Registered
charity no: 327309 |
